Melanoma Patient Conference 2018
Friday 22nd & Saturday 23rd June

10:30 REGISTRATION AND REFRESHMENTS

10:30 Registration and refreshments

11:20 Welcome Mrs Imogen Cheese, Conference Chair

11:30 – 12:30 Session One : Understanding Melanoma & Latest News

11.30 – 12.00 Terminology & Jargon - Interactive Session (Dr James Larkin)

12:00 – 12:30 Latest Trial News, Trial Standards, ASCO/ESMO (Dr Paul Nathan)

12.30 – 13.15 Lunch

13.15 - 15.45 Session Two : Trials – A Partnership in decision making.
13.15 – 13.40 Philosophy of a trial – How we use trials to make decisions (Prof Cindy Bellingham)
13.40 – 14:05 Sequencing & Treatment Breaks - When to change & why (Dr Pippa Corrie)
14.05 – 14.30 Limited Options – Does rare mean no choice (Prof Christian Ottensmeier)
14.30 – 14.55 Adverse Events - Immediate or Permanent effect (Dr Neil Steven)
14.55 - 15:15 Understanding the Statistics – Patients perspective (Kay Curtin)
15:15 – 15:45 Panel Discussion & Audience questions

15:45 – 16:15 Refreshments & Networking

16:15 – 18:30 Session Three : What else can we learn about Melanoma
16:15 – 16.40 Monitoring Systems The future & opportunity - CTC’s, CTDNA, Liquid Biopsies (Prof Mark Middleton)
16.40 - 17.05 Inherited Risk (Redhead gene / Parkinson link etc) (Prof J Newton-Bishop)
17:05 – 17.30 Adjuvant therapy for high risk Melanoma (Dr Matthew Wheater)
17.40 – 18.05 Lymphodema – Patients Perspective (Sandra Sayce)
18:05 – 18:30 Panel Discussion & Audience questions

18.30 - 19:30 Reception & Networking

20.00 – 22:30 Dinner
After Dinner Engagement & Awareness Initiative Launch!

Saturday 23rd June

08:45 – 11:00 Session One : Living with Melanoma
08:45 – 09.10 Fertility and Starting a family after Melanoma & treatment (speaker tbc)
09.10 – 09.35 Scars - Infection, Protection & Stitches (speaker tbc)
09.35 – 10.00 Completion Lymphadenectomy in 2018 (Mr Oliver Cassell)
10:00 – 10.25 Staging Melanoma & Recurrence Statistics – truth v uncertainty (speaker tbc)
10.25 – 10.40 Behind the Headlines, Diet & its impact – Patients Perspective (Dr Lauren Cara)
10:40 – 11:00 Panel Discussion & Audience questions

11:00 – 11.30 Refreshments & Networking

11:30 – 13:45 Session Two : Talking about Melanoma
11:30 – 11.50 The Melanoma Care Decision Making Progress – (Brad Groves Deputy Operational Lead NHS England)
11.50 - 12.10 Real World Data – what it is used for & why. (speaker tbc)
12.10 – 12.30 Palliative Care – Who calls the shots? (Peta Hughes CNS)
12.30 – 12.50 Prevention & Management of Anxiety (Dr Christian Aldridge)
12.50 – 13.10 Sharing Links & Resources – Patients Perspective (Lorraine Mir)
13:10 – 13.40 Panel Discussion & Audience questions

13.40 – 13:45 Closing Remarks

13:45 – 14:30 Lunch and networking

14.30 - 15.30 - Working Group Session. Discuss projects, initiatives & Charities. (to include Melanoma Data Registry update & Charity Updates)

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